Amanda Gene Tries UK Candy

“I need an Aero bar-I am craving English candy!” I posted to my Facebook page. Seeing my status my friend, Sara wrote me a private message saying she would have some goodies delivered.  I excitedly checked the mailbox every day, and one cold evening it finally came.  I ran into my house full of excitement!

The next day, I created a YouTube Video.

Like most YouTuber’s I decided to do a surprise dip; picking one item at a time. The first thing I pulled out was not candy, but a Nystagmus Network wristband. The details on the band really pop! It looks so pretty.

The second item was an Aero’s bar that was peppermint flavored. For me, personally I am very particular about how strong the flavor is when I eat this flavor of candy. I was so surprised how light and delicious the flavor was. I loved how light the bar was. The next two items were a light blue Nystagmus Network wristband and a white Nystagmus Network wristband. They are really pretty and I will be wearing them with joy. For those of you who do not know what the Nystagmus Network is it is an amazing charity that provides support, and research  for those who have Nystagmus ,an eye condition where the eyes move rapidly either vertically or horizontally or sometimes in a combination of the two, and their families.

The next candy I got was a Dairy Milk bar. I have heard about them on YouTube as well as hearing my friends talk about them.  The candy was sweet and it reminded me of the Hershey’s candy we have here in the states, however this bar was a lot sweeter. Which I loved.

After finding another awesome Nystagmus Network wristband. I got a Milky bar. I was surprised that I liked the white chocolate because I generally do not care for white. This candy bar was sweet and very easy to chew. I really liked it.

After pulling out another Nystagmus Network wristband I pulled out Werther’s Original Hard Candy. We have these in the states, and I like them. I am going to share these with my grandfather because this is one of his favorites.

After pulling out my last Nystagmus Network wristband I pulled out my last item. A Bumper Bag. This bag has a mixture of different candies. Since lemon is one of my favorites, I tried a piece of that. The texture reminded me of our Laffy Taffy candy. The piece I tried from the Bumper Bag was bursting with flavor.

Thank you again, Sara for my candy and wristbands.

Author’s note: none of the candy brands nor the Nystagmus Network has sponsored this blog post or my YouTube video. Please feel free to check out the awesome Nystagmus Network charity anyway! 😊

Nystagmus Awareness Day 2018: Nystagmus in the open

As I sat there in our living room with tears running down my cheeks, I asked my mom, when I was 15-years-old, “Why aren’t the doctors looking for a cure? I want to be able to drive.” My mom did not know the answer about any treatment plans.

Now at age 30, I still do not have my driver’s license, however I know that my future is a lot brighter. I have a bachelor’s of Arts degree and 53 continuing education certificates. I have different pieces of technology that help me achieve success every day.

However, many people still do not know what Nystagmus is. That’s why 20th of June is celebrated as Nystagmus Awareness Day. This year’s theme is: Nystagmus in the open. This year’s theme is to get the general public to become aware of the condition and to get more people who have it talking.

Nystagmus is an eye condition where the eyes move continuously in either in a vertical, horizontal, or circular pattern even though sometimes there can be any mix in the patterns. There are two main types of Nystagmus. The first one is called Congenital Nystagmus, or in recent years renamed Infantile Nystagmus (IN) or rarely Early Onset Nystagmus. People who have Congenital Nystagmus are born with the condition and sometimes there is no known cause as to why someone has it.

The second type of Nystagmus is called Acquired Nystagmus. This impacts people later in life and sometimes has a cause; such as impact of medicine, a head injury, or having vertigo. Both of these kinds of Nystagmus impact people’s vision, which can range from being legally blind to having low vision. It impacts people differently.

Right now, there is no cure for Nystagmus, however I know that the Nystagmus Network is working with scientists, medical doctors and other professionals to improve our quality of life, and hopefully one day have a cure.

The Nystagmus Network does more than research, they also provide peer-to-peer support, family support, and different treatments. However, this can not be done without the help of the public. Please consider  making a donation.

For more information about Nystagmus please visit: Nystagmus Network’s home page

To read more about how people with Nystagmus are amazing please consider subscribing to their newsletter, Focus.