Mid-term reflection: pondering thoughts (independent living skills series 21)

Since it is October and I only have four more months until my scheduled graduation I decided to write a mid-term reflection.

I like my classmates and staff at school. I feel like the school lacks organization when it comes to getting students organized for their assigned lessons.  I wish the teachers would provide class syllabuses to help students keep track on what they are learning.

When I first started school, back in May, I was hesitant to cook and to travel on my own. I had limited knowledge about the Alexa Echo.

I now have a new sense of freedom. I now know how to look up recipes, check spelling of words, do math, get times and keep my shopping and To-Do lists up to date. I use my Alexa daily.

In the kitchen, I am able to cook simple meals and desserts. As well as, use my adaptive equipment to chop fruits and vegetables, check temperatures on a wide variety of meats, and how to confidently place and remove pans from a hot oven. I cook for myself more often, and enjoy new dishes. (Yum, baked eggplant 😊)

When it comes to my travel skills I am no longer afraid to cross streets with heavy traffic, use escalators and elevators and use alternative transportation. I feel like I can travel anywhere I want including traveling abroad. Over these past few months I have learned to have high expectations for myself; all this despite having Nystagmus.  I have positive friends who believe I can achieve my goals and dreams rather than to say I cannot achieve.  On top of all this, I have decided not to listen to the people who say, “No, you cannot you have a cane; or you are visually impaired,” I say to those people, I have confidence and independence now that I have all this training. Getting this confidence and independence did not just happen over night and it came with a lot of work on my part, however I am happy with who I am today.  I know what goals I want to achieve in the future.

Thank you everyone for your support; without you I would have never made it this far. I am looking forward to my graduation.

 

 

The Disabled Bloggers Tag

This Tag was first created by Elin otherwise known as MyBlurredWorld.

Click here to read Elin’s The disabled blogger Tag post

1, When and Why did you start your blog?
I was a Freshmen in college, and we had to set up and keep a blog for the semester. I liked the class because we were able to choose the content of our blogs.
2. Did you intend to talk about your disability online from the beginning?
Yes, because my eye condition is so rare, many people haven’t heard of it.
3. Have you ever been skeptical about talking about your disability online?
No, I haven’t been skeptical about talking about it. I was hoping that this would actually help educate the public on the conditions I have.
4. What kind of response have you/do you receive in terms of your disability related blog posts?
For me its been positive, and a lot of people have came forth to say “Thank You,” because they have one of my conditions themselves and they stated they no longer feel alone.
5. Do you write/Talk about other topics apart from disability?
I’m trying out different topics, and I love learning about what other interests my audience have besides disability related topics.
6. What steps do you take to make your blog accessible to yourself as well as other people?
I love using WordPress, and for me, this has been the easiest platform for me to blog on. I try to make the blog accessible to others by reminding myself of the color scheme and the size and style of font that I use.
7. What is your favorite thing about blogging about your disability?
The fact that I can use this platform to help educate the public about the myths and true facts that surround disability.
8. What are your top three favorite disability related blog posts that you’ve ever published?
My three favorites would be:
1.Call to action: Come help make a big splash for a big impact!

2. Nystagmus Tag (Nystagmus Awareness Day)
3. Jessica and Diesel: the freedom continues
9. Do you think that the disabled blogger/YouTube Community is overlook?
Not really, I think there are a lot of other bloggers and YouTubers that are making a difference to help stop the stigma around disability. However, we still have a long way to go when it comes to continuing to making the facts more positive rather than negative facts known.

10. Do you find it difficult to think of new disability related content to publish?
Sometimes I do. However, I have a lot of great role models out there who are providing great ideas.
11. Do you think that blogging about your disability helps change people’s perceptions?
I think I am, and I’m proud to help shine some positive light on what people with disabilities can do.
12. Who do you Tag?
I would like to Tag the following bloggers to complete the tag:
Well Eye Never (Glen)
Life’s Journey (Jessica)

#How I See (RNIB’s Campaign)

Hi Blog world,

Last week, on one of the Nystagmus Support groups that I am a member of,  posted YouTube’s Glen’s (Well_eye_never) #How I see campaign YouTube video. This campaign is ran through RNIB.  I really liked Glen’s video and the campaign, and once I saw more people tweeting their #How I See campaign on Twitter, I thought it was time to join in.

When people look at me they don’t realize that I have a visual impairment from Nystagmus. Once people find out that I am visually impaired I explain to them that my vision is like looking through a clear piece of Saran Wrap. For me my vision is best during the morning, and as the day goes on, and the more tired my eyes get the blurrier my vision becomes.

I also have night blindness which makes getting around in low light, during dusk or during the night more difficult. I use a cane when I need it, and it makes getting around easier.

Even though I have these vision problems that doesn’t mean I have to stop doing everyday tasks. I have low vision aids such as a dome magnifier to help me access small print.  I have a talking book player and access to talking books from my local library, as well as, Bookshare.org so I can enjoy audio books of all different  Genres.

As far as, using the computer I use a screen reader called, ZoomText. I like this program because it can speak what’s on the screen to me, and I can also change the color of the screen to make things easier to read. It has different ways of tracking the mouse pointer too, which helps me when my eyes are tired.  I have a speech to text reading and writing program called Kurzweil 3000-this program allows me to read books, and write and edit documents such as my blog. 🙂 It has many different features that makes using the program easy to use-such as, changing the background color, the tracker, and changing the speed at which text is read to me.

All in all, I can say the most important thing I use on a daily basis is my Apple Iphone. I can now text with ease because of the built-in microphone and voice reader. I can also use the magnifier instead of using my dome magnifier.

Lastly, the most important tool I have is great and supportive family and friends, no matter if its face to face or online, they remind me that I am a stronger person despite my disability, and to keep positive no matter what I face as a person with a visual impairment.

To learn more about RNIB  and their #How I See campaign visit their website at: http://www.rnib.org.uk/

To see Glen’s #How I see Campaign video visit his blog at: How I See (RNIB #HowISee Campaign)

Please note, none of these websites have sponsored my post, but please feel free to check out their links.

If you haven’t done so please follow my blog,

blog soon,

Amanda Gene