International Nystagmus Awareness Day (2019)

Nystagmus is a medical condition that many people haven’t heard of before. Nystagmus is an eye condition where the eyes move in a vertical, horizontal and sometimes circular pattern. There is no cure and it can impact someone’s life in many different ways.  I was born with Nystagmus. I am not alone. I have met many people who have Nystagmus.

Over the past year I have learned one very important lesson. Nystagmus can be challenging, but I can live a full life despite having it.

Some of the challenges I have had are bullying.  I can not drive. But I have learned there are other modes of public transportation that I can use to be successful. I use accessible technology to access the computer, printed materials, etc.

Nystagmus has made me more positive. It has given me the motivation to do well with my education. I received my regular rather than my special education diploma. I received it with honors too. In college I earned my degree in journalism. I feel passionate about helping parents, children and the general public better understand Nystagmus. That is why I decided to start my own business to help others learn about Nystagmus and how to live a full life despite this. I post information related to Nystagmus on my blog, Facebook page, and YouTube channel.

The public can also support the Nystagmus Network. This charity helps people with Nystagmus. They are also working with different networks to better improve the quality of life and we hope one day a cure.